tag:blogger.com,1999:blog-3498313549386033680.post8679768799447251351..comments2022-10-28T10:24:31.940-04:00Comments on RugbyHubby: Up First, Boston...rugbyhubbyhttp://www.blogger.com/profile/16718791665503264870noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3498313549386033680.post-40796045527457878472013-06-17T22:43:31.562-04:002013-06-17T22:43:31.562-04:00Hi Terri - second time leaving a commetnt as I was...Hi Terri - second time leaving a commetnt as I wasn't logged in the first time! :)<br /><br />This is a GREAT story...I know the docs will have me on something. I'd rather avoid the Velc but I know it's a good thing. Just a matter of how long. I was on Rev for three years - the monthly phone calls were nuts!<br /><br />Thanks again for reading and writing (now we need some arithmetic!)<br />rugbyhubbyhttps://www.blogger.com/profile/16718791665503264870noreply@blogger.comtag:blogger.com,1999:blog-3498313549386033680.post-38908475513094590572013-06-17T22:30:42.179-04:002013-06-17T22:30:42.179-04:00Good to hear you are doing so well. My daughter ha...Good to hear you are doing so well. My daughter had Velcade/Dex 4 rounds before her transplant which put her in complete remission. The Velcade gave her an irregular heartbeat & blood clot so now she is on heart meds. After transplant she was put on Revilmid maintenance even though she was in complete remission. She started out at 15mg, decreased to 10mg then 5 mg because her counts kept getting low. She is off now but we are not sure if she will be going back on. She will be a year out of transplant in August. She goes to Thomas jefferson Hospital in Philadelphia.Terrijhttps://www.blogger.com/profile/07685748435941194869noreply@blogger.com