Tuesday, September 21, 2010

Not Much To Update

Well there's not much to say - and that's actually good.  I'm finishing up Cycle 7 of my maintenance chemo of 15mg rev and I've gotten off everything else.  No more Lyrica, no more Nortriptylene.  I think the Lyrica (the last to go) was actually causing the weight issues I was facing.  Since stopping I've dropped about 7 pounds.  I'm getting up early and doing my best to knock out a few pushups and situps but I can't really say I'm "working out" but I'll take it for now.  Unfortunately, I can't play rugby (our Old Boys are into their 2nd match of the season and I've not been able to get out for one) so my effort to get fit (so I can embarrass myself on the pitch) is even gone!   But I'll get there.

I'm considered to be in a complete remission now.  The maintenance won't go away, but will decrease dosage at the end of the year and continue on as needed (slowly weaning off the teat of Revlimid).  I now see Mt Sinai every month (for bloodwork) but the doc every three.  I'm at DFCI every six months, just to keep them in the loop on how I'm doing.  I'm taking Zometa for protection, every three months though there has been some debate between the two doctors about how often that should be done.

So now life is getting back to normal and I consider myself lucky.  My son (7) has started his soccer (football) season and I was elected coach - rather, school marm.  I send out the emails, try to get everyone there on time, get the kids to kick the ball back and forth to each other until the real coach shows up and puts them into drills!  Now I get the biggest challenge of my life - explaining the concept of good sportsmanship to your seven year old!  Funny that daddy's stories of rugby don't quite cut it ("just because we lost 65-nil we didn't storm off the field upset, rather we went to the pub and got cracking drunk together")  I'm thinking of bringing juice boxes so that we can pass out drinks to the other team after the match but I'm not quite sure it will have the same effect as a nice pint or two.

Beyond that, work is extremely busy and the market here in the City sure is tough.  There are many people I know looking for work.  I consider myself luck to be busy and have a job - too many people I know that don't have either.

Off to Mt Sinai tomorrow to get the blood checked, confirm my numbers and get my Rev renewal.  Hopefully I won't be so long between postings next time.  Cheers...

Friday, September 3, 2010

In the end...

I arrived at 11:05
I am done and departing at 15:49

What a mess!


- Posted using BlogPress from my iPhone

Help me ObiWanKenobi

I just overheard the receptionist, "I have Mr McHugh standing here and I don't have his chart or any orders" "yes. No, no I don't see it. What, he brought it over? Oh wait, here it is. You're absolutely right. I've got it." "MR MCHUGH?"

Now were going on a tour of the treatment areas, nope, no seat there. Not there either. Oh look that seats taken as well. Why don't you wait here NY the scale as I try to find somewhere to out you.

God I miss my boutique!


- Posted using BlogPress from my iPhone

Macy's One Day Sale! I hate Macy's

So my first experience with getting treatment at Mt Sinai is like a Macy's One Day Sale (thank you DO for the Macy's analogy).

I have an 1130 appt and I'm there, labs already done, at 1125. At 1235 I said forget this, let's get my Zometa treatment done first since DrJ was behind schedule. I asked if I needed my paperwork to go over to the treatment area and they said, no just give your name.

Of course when I got there three people asked for my piece of paper!!! Then they couldn't find my chart - that's because it was still over at the Dr's area. Rather than wait, I went and got the chart.

Now it's sitting in a file sorter, initially alone, and now pushed behind by 6 other charts.

I hate "Macy's". I miss my boutique!


- Posted using BlogPress from my iPhone