Friday, July 20, 2012

Lost Connection

Well, I'll start with saying I'm fine - as that's probably what most people are looking to see or hear.  It's bizarre, as I look at my last post being February, how easy it is to forget to update things.  Thanks to a reader who happened on one of my posts I've looked at my blog and realized 1) that I am not keeping in touch and confirming with everyone that I've not fallen off the radar and 2) that I've kept with the goal of my blog (as stated in the header) of this being my place to say what I want when I want (even if that when is separated by numerous months!

I'm monthly at the hospital to check my bloodwork and they've rolled out that really cool MyChart by Epic - which never gets updated and never really gives me anything I need - BUT IT'S GOT GREAT POTENTIAL!  The only other update is my NP, a good friend who made sure I was always taken care of, has left for another hospital and a different doctor - that's a bummer.  I need to see Dr J and I also need to schedule my visit to DFCI.  I'm on cycle 31 of my maintenance revlimid so we'll see what happens next.  Everything seems to be normal except I'm too busy, the summer is almost over and I can't keep up with my kids (they're getting too old way too quick).

Thanks again to everyone reading!



linda said...

Hi Bill,

I apologize for posting this on your blog, I just didn’t know how else to contact you! My name is Linda and I’m the production assistant for an online health community called ( ). I came across your blog while doing some research into the online Blood Cancer community. I was so impressed with the great resource you have created for the greater Blood Cancer community.

Just wanted to drop you a quick note because we recently launched a new video platform called and are in the process of building a Blood Cancer Channel featuring the advice, information and wisdom of Health Activists like yourself. I think you would be an excellent addition to the channel and I would love to chat with you about possibly creating a video with us!

Please check out our site; and get back to me at your convenience if you have any interest.

I know this note is a little out of the blue and I understand if it’s not something you would be interested in, but I didn’t want you to miss out on the opportunity.


Production Assistant
WEGO Health

Anonymous said...

Hi Bill-
I am not really sure how I stumbled onto your blog at this point... i think a news article on MM prompted me to do some google searches. I have been reading the posts and getting to know the author, and then oh my God, there is your photo! I am really sorry to hear about what you have been going through, but am so glad you are in remission. also happy to see you are attacking this thing with the same great sense of humor I remember (albeit barely, it was like 30 years ago! :)...) I wish you all the best and look forward to reading many more blog posts in the future! Take care,
Amy Beauchamp Scherer

rugbyhubby said...

Linda - saw your comment but have been extremely busy and not able to respond. Happy to discuss further but I would like a little more information re the site, goals, etc.

Amy - wow - talk about stumbling into something. Glad you found my blog and appreciate your thoughts. Reach out to me at rugbyhubby@yahoo,com

Tx. Bill