For the non-MM readers today is day "-1". In the stem cell transplant process the day that you get your cells back (and autologonous transplant, I'm using my own cells, not cells from a donor) is day "0". I arrived this morning and around Noon got my port put in. This is a catheter that is inserted into my jugular and down into the vein from the heart. It's a 3-porter with each port representing the depth to which it reaches. An xray was taken and I hope to be able to get and share at some point in the future but the reason I picked up the macbook and started writing is the may MOUTH IS FREEZING!
The melphalan has lots of nasty side effects. One of which is mouth sores (and I'll get someone to remind me of the name, something like mucusitis). They've found if that you suck on ice chips and really get them down in there (between your cheek and gums!) you will prevent the melphalan from getting into the mouth. Sort of like putting the inside of your mouth into a cryogenic freeze. To acheive this state you need to suck on these ice chips (which aren't really chips, they're about the size of goose shit!) for thirty minutes prior to the melphalan and for an hour afterwards. 90 minutes of continuous ice in your mouth!
You try this! It's not so easy.
The melphalan has lots of nasty side effects. One of which is mouth sores (and I'll get someone to remind me of the name, something like mucusitis). They've found if that you suck on ice chips and really get them down in there (between your cheek and gums!) you will prevent the melphalan from getting into the mouth. Sort of like putting the inside of your mouth into a cryogenic freeze. To acheive this state you need to suck on these ice chips (which aren't really chips, they're about the size of goose shit!) for thirty minutes prior to the melphalan and for an hour afterwards. 90 minutes of continuous ice in your mouth!
You try this! It's not so easy.
3 comments:
hang in there honey! xxxxmom
I can think of a few people who would be doing us all a favor by filling their mouth with ice.
You are a good soldier..... Never heard of this one but know plenty that would like to know it!! Will pass it on to a few of my patients .....
Post a Comment